Oxford Blood Group is a patient involvement group for anyone with a haematology (blood) condition. Our members are people who have been treated at the Oxford hospitals and throughout the Thames Valley Network.
Our aim is:
- to enable our staff, our researchers and our department to listen to and learn from patient experience
- to work with patients in collaborative and productive partnerships.
- involve people who use our services in quality improvement and service development
- involve people in discussions with senior management and senior researchers
- involve people in the design and implementation of haematology research
- inform people of training opportunities, events, and activities to take part in.
Group members might, for example, be invited to contribute to new patient information resources, such as leaflets or videos. We might join discussion groups to help researchers with their ideas for a research study. We might take part in discussions about priorities for people with different conditions. We might be asked to review patient information that is given to people taking part in clinical trials.
Group members sign up to be notified of different activities and can choose to be part of whatever interests them. You don’t have to commit to anything.
“It's a great opportunity to be able to use my experience to give something back and hopefully improve future treatment and patient experience”
The video below explains the aims of the Oxford Blood Group and how patients with blood disorders, their carers and other members of the public can be involved.
To find out more about becoming a member, email OxfordBloodGroup@ouh.nhs.uk
Read our annual newsletters for more information about the patient involvement activities hosted by Oxford Blood Group:
What is PPI
Patient and Public Involvement (PPI), sometimes called Patient and Public Involvement and Engagement (PPIE) refers to the many ways in which patients and the public can get involved in the design of research. It takes many forms, but the objective is always the same. Only by carrying out our research with patients can we ever hope to do work that is meaningful and of high quality. Medicine and research are a genuine partnership between patients, doctors and scientists.
If you wanted to get involved, what form might this take? It could involve:
Joining a meeting to advise researchers and ask questions about a research proposal
Being part of panels with ongoing advisory roles for individual research projects
Contributing to publications as part of the trial team
Helping with sharing the news about the outcomes of research trials
Taking part in workshops to discuss research priorities. We are committed to integrating patients’ views into the research we carry out. This can be done through some of our James Lind Alliance Priority Setting Partnerships in blood transfusions, rare anaemias and bleeding disorders.
Helping to write and design resources and information used in clinical trials
Participating in Trial Steering Committees. You can join – help review what trials we run in Oxford and how we run them.
Reviewing our patient information sheets for clinical trials. You tell us – have we written them in a language that is easy to understand or is it still too full of jargon?
Training in PPI. There are lots of free training sessions for anyone who wants to get more skills in how to participate in PPI.