Alison Kay
FRHistS FRSA
Research Genetic Counsellor / Postdoctoral Researcher
Current status:
I am currently conducting qualitative research relating to personalised medicine, looking at the perspectives of clinical geneticists and genetic counsellors on a new personalised recurrence risk assessment tool (PREGCARE: Precision Genetic Counselling and Reproduction). My previous research project explored adult adoptees' views and experiences of consumer genomic testing kits (ancestry and health).
Background:
I completed an ESRC-sponsored doctorate in 2003 at Nuffield College, Oxford (graduate social science college), followed by a PGCE (DMU) and research and lecturing contracts at UK universities. In recent years, I expanded my interest into genomics and undertook a three-year training programme in Genetic and Genomic Counselling (School of Medicine, Cardiff University, 2021), which led to my current role of Research Genetic Counsellor.
I'm a member of the Association of Genetic Nurses and Counsellors (AGNC) and British Psychological Society (BPS) and hold elected fellowship of the Royal Historical Society.
Recent publications
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Providing recurrence risk counselling for parents after diagnosis of a serious genetic condition caused by an apparently de novo mutation in their child: a qualitative investigation of the PREGCARE strategy with UK clinical genetics practitioners.
Journal article
Kay AC. et al, (2023), J Med Genet
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Adoptees’ views and experiences of direct-to-consumer (DTC) genomic testing: an exploratory interview study from the UK
Journal article
Kay A. and Taverner N., (2022), Journal of Community Genetics