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Myeloma patient 10 priorities.pdf
What matters to people with multiple myeloma? Patient workshop outcomes 1. Can we better manage the short and long-term side effects of myeloma treatments? 2. How can we ensure that people with myeloma get the drug that best suits the genetic subtype of their disease? 3. How can we ensure that people have equal access to new myeloma treatments, regardless of whether or not they have private health insurance? 4. Can we identify a cure for multiple myeloma? 5. Can whole genome sequencing help the future of myeloma treatments? 6. How can we ensure that myeloma is diagnosed as early as possible? 7. What do we know about common factors in the history of people with myeloma, such as environmental, demographic, ethnic and family histories? How can we share this information with people who have or might develop myeloma? 8. Can we learn more about the long-term effects of prolonged cycles of treatment? 9. How can we maximise opportunities for people with myeloma to access new cellular / gene therapies? 10. How do we stratify risk and adapt treatments accordingly to prevent people being overtreated (for example using measures of MRD)?