Contact with other families

ATR-X contact groups have been set up in the UK, US and the Netherlands by the following people.

To a great extent much of what we know about this condition relies on information from the families. We are always happy to hear from you and if you wish we can see you in our Oxford clinic. We can't promise to answer all your questions, but would be delighted to discuss problems, your observations and progress on the research front.

Richard Gibbons & Douglas Higgs
MRC Molecular Haematology Unit
Weatherall Institute of Molecular Medicine
John Radcliffe Hospital
Oxford OX3 9DS

tel: 01865 222632